This Privacy Policy explains how participant data is collected, processed, stored, and protected within the EMA (Ecological Momentary Assessment) Research Platform. The policy is designed to ensure transparency in research data practices and to uphold participant privacy in accordance with institutional governance standards and applicable data protection regulations.
By accessing or participating in research activities conducted through this platform, you acknowledge the data practices described below.
The platform may collect a range of data elements necessary to support approved research protocols and study operations. These may include:
The platform is designed to avoid unnecessary collection of directly identifiable personal information unless explicitly required and approved within the research protocol.
All data is collected exclusively for legitimate research purposes. These purposes include:
Participation in EMA studies hosted on this platform is voluntary and governed by informed consent procedures administered by the responsible research institution or study team. Data processing is conducted under one or more of the following lawful bases, as applicable:
Participants are provided with clear study information prior to enrollment, including data usage scope and withdrawal provisions.
Participant data is stored within secure, access-controlled infrastructure designed to protect confidentiality, integrity, and availability.
Security safeguards include:
These measures are implemented to prevent unauthorized access, disclosure, alteration, or misuse of research data.
Data will be retained only for the duration necessary to fulfill the objectives of the approved study protocol and to comply with institutional, regulatory, or funding-body requirements.
Upon completion of the retention period:
Retention timelines vary by study and are defined within ethics approvals and governance frameworks.
Subject to applicable regulations and research governance policies, participants may exercise certain data rights, including:
Requests are reviewed in alignment with Institutional Review Board (IRB) guidelines, ethical approvals, and scientific integrity requirements, which may limit modification or deletion of already-analyzed datasets.
For questions regarding this Privacy Policy, data handling practices, or participant rights, please contact the responsible research institution or email: admin@myjomcare.com
This Privacy Policy may be updated periodically to reflect regulatory changes, institutional requirements, or technical platform enhancements. Continued use of the platform following policy updates constitutes acknowledgment of the revised terms.